Today is Rare Disease Day and we’re sharing the story of one of our patients, 3-year-old Greyson, who was diagnosed with PURA Syndrome when he was 2 years old. Only about 500 people in the world share the same diagnosis.Greyson’s diagnostic odyssey …
Feb. 28 is Rare Disease Day. But you might be surprised to learn many of these diseases really aren’t as “rare” as you might think.
A rare disease is defined as any disease affecting fewer than 200,000 people in the U.S.1 While …